About ENTWINE
ENTWINE is a 4-year Marie Skłodowska-Curie Innovation Training Network (ITN), funded by the European Union and started as of September 2018. The Network will train 15 Early Stage Researchers (ESRs) for high quality PhD training.
Mostly due to increased longevity and medical advances, the needs of older/ill individuals for long-term care rise rapidly while the availability of informal caregivers decreases. Informal caregivers are those who provide unpaid care to a relative or friend with a chronic illness, disability or other long-lasting health or care need. This “Care Gap” will create huge problems for the sustainability of European health care systems that rely heavily on the provision of informal care. The aim of ENTWINE’s team is to investigate broad spectrum of challenges in informal caregiving and issues concerning the development and use of innovative psychology-based and technology-based interventions that support willingness and opportunity to provide informal care. The focus is on overcoming barriers following a user-centered, stakeholder-driven implementation and agile science approach to promote the adoption and implementation of innovative solutions to support informal caregivers. ENTWINE represents a stepping stone towards sustainable informal care throughout Europe.
The ethical side of technology: Value Based Design for Informal Caregivers Technologies
Informal caregivers are friends, neighbors, spouses, or family members who provide unpaid care for an ill or non-self-sufficient loved one.
Biliunaite, I. B., Kazlauskas, E., Sanderman, R., & Andersson, G. (2021). Process Evaluation of Internet-Based Cognitive Behavioral Therapy Intervention for Informal Caregivers . Frontiers in Medicine, 8:725510. doi: 10.3389/fmed.2021.725510 https://doi.org/10.3389/fmed.2021.725510
Bastoni, S., Wrede, C., da Silva, M. C., Sanderman, R., Gaggioli, A., Braakman-Jansen, A., & van Gemert-Pijnen, L. (2021). Factors Influencing Implementation of eHealth Technologies to Support Informal Dementia Care: Umbrella Review JMIR aging, 4(4), e30841. https://aging.jmir.org/2021/4/e30841
Sharma N, Brinke JK, Gemert-Pijnen JEWCV, Braakman-Jansen LMA (2021). Implementation of Unobtrusive Sensing Systems for Older Adult Care: Scoping Review JMIR Aging 2021;4(4):e27862 . https://doi.org/10.2196/27862
Svedin, F., Brantnell, A., Farrand, P., Blomberg, O., Coumoundouros, C., von Essen, L., Åberg, A. C., & Woodford, J. (2021). Adapting a guided low-intensity behavioural activation intervention for people with dementia and depression in the Swedish healthcare context (INVOLVERA): a study protocol using codesign and participatory action research. BMJ Open, 11(7), e048097 . https://doi.org/10.1136/bmjopen-2020-048097
Petrovic, M., & Gaggioli, A. (2021). The Potential of Transformative Video Design for Improving Caregiver’s Wellbeing. Health Psychology Open. https://doi.org/10.1177/20551029211009098
Biliunaite, I., Kazlauskas, E., Sanderman, R., Truskauskaite-Kuneviciene, I., Dumarkaite, A., & Andersson, G. (2021). Internet-Based Cognitive Behavioral Therapy for Informal Caregivers: Randomized Controlled Pilot Trial. JMIR, 23(4), 21466. https://doi.org/10.2196/21466
Biliunaite, I., Dumarkaite, A., Kazlauskas, E., Sanderman, R., & Andersson, G. (2021). ICBT program for improving informal caregiver well-being: A qualitative study. Internet Interventions, 23, 100361–100361. https://doi.org/10.1016/j.invent.2021.100361
New research from @CarersTrustScot shows what an impact Covid-19 has had on #CarePartners
📌Care partners spent 90% more time providing unpaid care last year
📌84% of care partners say their #MentalHealth is worse than before the pandemic
➡️ https://www.youtube.com/watch?v=R-Z7PHIZckw
➡️ Have a look at the Protocol Paper of the ENTWINE-iCohort study:
https://www.mdpi.com/1660-4601/19/2/821/htm
Congratulations to the WP1 researchers👏🏻
Stay tuned for further publications examining #caregiver experiences in the context of #chronic #health conditions.
A new research article by our ESR @ieva66266001 investigating informal caregiver needs and burden:
http://dx.doi.org/10.1136/bmjopen-2021-054607
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#informalcare #burden #support