2024


Elayan, S., Bei, E., Ferraris, G., Fisher, O., Zarzycki, M., Angelini, V., ... & Morrison, V. (2024). Cohort profile: The ENTWINE iCohort study, a multinational longitudinal web-based study of informal care Plos one, 19(1), e0294106. DOI: https://doi.org/10.1371/journal.pone.0294106.

Dang, S., Looijmans, A., Lamura, G., & Hagedoorn, M. (2024). Perceived life balance among young adult students: a comparison between caregivers and non-caregivers. BMC psychology, 12(1), 18. DOI: https://doi.org/10.1186/s40359-023-01500-z.

Ferraris, G., Gérain, P., Zarzycki, M., Elayan, S., Morrison, V., Sanderman, R., & Hagedoorn, M. (2024). The associations of dyadic coping strategies with caregiver’s willingness to care and burden: A weekly diary study.Journal of Health Psychology, 13591053231223838. DOI: https://doi.org/10.1177/13591053231223838.

Dang, S., Looijmans, A., Sharma, N., Jansen, A. B., & Hagedoorn, M. (2024). Exploring the support needs of young adult caregivers, their issues, and preferences towards a web-based tool: a mixed-method study. BMC Digital Health, 2(1), 3. DOI: https://doi.org/10.1186/s44247-023-00057-6.

2023

Laban, G., Kappas, A., Morrison, V., & Cross, E. S. (2023). Building Long-Term Human–Robot Relationships: Examining Disclosure, Perception and Well-Being Across Time. International Journal of Social Robotics.

Premanandan, S., Ahmad, A., Cajander, Å., Ågerfalk, P., Dolezel, M., & van Gemert-Pijnen, L. (2023). Designing a Mobile e-Coaching App for Immigrant Informal Caregivers: Qualitative Study Using the Persuasive System Design Model. JMIR mHealth and uHealth, 11, e50038.DOI: https://doi.org/10.2196/47650.

Vuijk, J. G., Klein Brinke, J., & Sharma, N. (2023). Utilising Emotion Monitoring for Developing Music Interventions for People with Dementia: A State-of-the-Art Review. Sensors, 23(13), 5834 https://doi.org/10.3390/s23135834.

Sharma, N., Braakman-Jansen, L. M. A., Croockewit, J. H., Oinas-Kukkonen, H., & Van Gemert-Pijnen, L. (2023). Communicating Care: Identifying Information and design requirements of Informal Caregivers of Older Adults with Cognitive Impairment in changing scenarios. 11th International Conference on Behavioral Change Support Systems (BCSS 2023).

Sharma, N., Le, D. V., & Havinga, P. J. (2023). Exploring the Impact of Locations and Activities in Person-wise Data Mismatch in CSI-based HAR 19th International Conference on Distributed Computing in Smart Systems and the Internet of Things (DCOSS-IoT) (pp. 232-239) https://doi.org/10.1109/DCOSS-IoT58021.2023.00048.

Sharma, N., Braakman-Jansen, L. M., Oinas-Kukkonen, H., Croockewit, J. H., & Gemert-Pijnen, J. V. (2023). Exploring the Needs and Requirements of Informal Caregivers of Older Adults With Cognitive Impairment From Sensor-Based Care Solutions: Multimethod Study. JMIR aging, 6, e49319DOI: https://doi.org/10.2196/49319.

Premanandan, S., Ahmad, A., Cajander, Å., Ågerfalk, P., & van Gemert-Pijnen, L. (2023). Designing and Evaluating IT Applications for Informal Caregivers: Protocol for a Scoping Review. JMIR Research Protocols, 12 (1) DOI: https://doi.org/10.2196/47650.

Ferraris, G., Zarzycki, M., Gérain, P., Elayan, S., Morrison, V., Sanderman, R., & Hagedoorn, M. (2023). Does willingness to care fluctuate over time? A weekly diary study among informal caregivers. Psychology & Health, 1-19. DOI: https://doi.org/10.1080/08870446.2023.2249538.

Ahmad, A., Premanandan, S., Langegård, U., Cajander, Å., Johansson, B., Carlsson, M., & Ehrsson, Y. T. (2023). Positive Design Framework for Carer eSupport: Qualitative Study to Support Informal Caregivers of Patients With Head and Neck Cancer in Sweden. JMIR cancer, 9(1), e45748.

Premanandan, S., Ahmad, A., Cajander, Å., & Ågerfalk, P. (2023). Designing a Persuasive E-Coaching Application for Informal Caregivers. In Caring is Sharing–Exploiting the Value in Data for Health and Innovation (pp. 922-926). In Medical Informatics Europe. IOS Press. DOI: 10.3233/SHTI230310

Ferraris, G., Bei, E., Coumoundouros, C., Woodford, J., Saita, E., Sanderman, R., & Hagedoorn, M. (2023). The interpersonal process model of intimacy, burden and communal motivation to care in a multinational group of informal caregivers. Journal of Social and Personal Relationships. https://doi.org/10.1177/02654075231174415

Premanandan, S., Ahmad, A., Cajander, Å., Ågerfalk, P., & van Gemert-Pijnen, L. (2023) Design Suggestions for a Persuasive E-Coaching Application: A Study on Informal Caregivers’ Needs. Digital Health https://doi.org/10.1177/20552076231177129

Bei, E., Morrison, V., Zarzycki, M., & Vilchinsky, N. (2023). Barriers, facilitators, and motives to provide distance care, and the consequences for distance caregivers: a mixed-methods systematic review. Social Science & Medicine, 115782.

2022

Zarzycki, M., Seddon, D., & Morrison, V. (2022) Informal caregiver motivations, values, challenges and gains: A photovoice and interpretative phenomenological analysis of interrelationships. Journal of Health Psychology, 1-15. https://doi.org/10.1177/135910532211246

Zarzycki, M., Seddon, D., Bei, E., Dekel, R., & Morrison, V. (2022). How Culture Shapes Informal Caregiver Motivations: A Meta-Ethnographic Review. Qualitative Health Research, 32(10), 1574-1589. https://doi.org/10.1177/10497323221110356

Zarzycki, M., Seddon, D., Bei, E., & Morrison, V. (2022). Why do they care? A qualitative systematic review and meta-synthesis of informal caregiver personal and relational motivations to provide care. Health Psychology Review 10.1080/17437199.2022.2058581

Coumoundouros, C., Mårtensson, E., Ferraris, G., Zuidberg, J. M., von Essen, L., Sanderman, R., & Woodford, J. (2022). Implementation of e–Mental Health Interventions for Informal Caregivers of Adults With Chronic Diseases: Mixed Methods Systematic Review With a Qualitative Comparative Analysis and Thematic Synthesis. JMIR Mental Health, 9(11), e41891. DOI:10.2196/41891

Mårtensson, E., Coumoundouros, C., Sörensdotter, R., von Essen, L., & Woodford, J. (2022). Psychological interventions for symptoms of depression among informal caregivers of older adult populations: A systematic review and meta-analysis of randomized controlled trials. Journal of Affective Disorders. https://doi.org/10.1016/j.jad.2022.09.093

Ferraris, G., Fisher, O., Lamura, G., Fabbietti, P., Gagliardi, C., & Hagedoorn, M. (2022). Dyadic associations between perceived social support and psychological well-being in caregivers and older care recipients. Journal of family psychology. Advance online publication. https://doi.org/10.1037/fam0001009

Biliunaite, I. (2022). Internet intervention for informal caregivers in Lithuania. (Doctoral dissertation, Linköping University Electronic Press). https://doi.org/10.3384/9789179291877

Biliunaite, I. B., Kazlauskas, E., Sanderman, R., & Andersson, G. (2022). Informal caregiver support needs and burden: a survey in Lithuania . BMJ open, 12(1), e054607. http://dx.doi.org/10.1136/bmjopen-2021-054607

Coumoundouros, C., Farrand, P., Hamilton, A., & Woodford, J. (2022). Partners in care: who’s supporting the supporters. Kidney Matters. Issue 16. Pg 10-11. https://www.yumpu.com/en/document/view/66360252/kidney-matters-issue-16-spring-2022

Dang, S., Looijmans A., Ferraris G., Giovanni L., Hagedoorn M. (2022). Exploring the needs of spousal, adult child and adult sibling informal caregivers : A mixed-method systematic review. Frontiers in Psychology, 13. https://dx.doi.org/10.3389%2Ffpsyg.2022.832974

Hassan, A. (2022). P-88 Predictors of digital support services use by informal caregivers: a cross-sectional survey. BMJ Supportive & Palliative Care 2022;12:A41-A42. http://dx.doi.org/10.1136/spcare-2022-SCPSC.109

Laban, G., Ben-Zion, Z., & Cross, E. S. (2022). Social Robots for Supporting Post-Traumatic Stress Disorder Diagnosis and Treatment. Frontiers in Psychiatry. 12:752874. https://doi.org/10.3389/fpsyt.2021.752874

2021

Bastoni, S., Wrede, C., da Silva, M. C., Sanderman, R., Gaggioli, A., Braakman-Jansen, A., & van Gemert-Pijnen, L. (2021). Factors Influencing Implementation of eHealth Technologies to Support Informal Dementia Care: Umbrella Review JMIR aging, 4(4), e30841. https://aging.jmir.org/2021/4/e30841

Bastoni, S., Wrede, C., Ammar, A. , Braakman-Jansen, A. , Sanderman, R., Gaggioli, A., Trabelsi, K., Masmoudi, L., Boukhris, O., Glenn, J. M., Bouaziz, B., Chtourou, H. , van Gemert-Pijnen, L., & ECLB-COVID19 Consortium (2021). Psychosocial effects and use of communication technologies during home confinement in the first wave of the covid-19 pandemic in Italy and the Netherlands. International journal of environmental research and public health, 18(5), [2619]. https://doi.org/10.3390/ijerph18052619

Bei, E., Zarzycki, M., Morrison, V., & Vilchinsky, N. (2021). Motivations and willingness to provide care from a geographical distance, and the impact of distance care on caregivers’ mental and physical health: a mixed-method systematic review protocol. BMJ Open, 11(7), e045660. http://dx.doi.org/10.1136/bmjopen-2020-045660

Bertuzzi, V., Semonella, M., Bruno, D., Manna, C., Edbrook-Childs, J., Giusti, E. M., ... & Pietrabissa, G. (2021). Psychological support interventions for healthcare providers and informal caregivers during the COVID-19 pandemic: a systematic review of the literature. International journal of environmental research and public health, 18(13), 6939. https://doi.org/10.3390/ijerph18136939

Biliunaite, I., Kazlauskas, E., Sanderman, R., Truskauskaite-Kuneviciene, I., Dumarkaite, A., & Andersson, G. (2021). Internet-Based Cognitive Behavioral Therapy for Informal Caregivers: Randomized Controlled Pilot Trial. JMIR, 23(4), 21466. https://doi.org/10.2196/21466

Biliunaite, I., Dumarkaite, A., Kazlauskas, E., Sanderman, R., & Andersson, G. (2021). ICBT program for improving informal caregiver well-being: A qualitative study. Internet Interventions, 23, 100361–100361. https://doi.org/10.1016/j.invent.2021.100361

Biliunaite, I. B., Kazlauskas, E., Sanderman, R., & Andersson, G. (2021). Process Evaluation of Internet-Based Cognitive Behavioral Therapy Intervention for Informal Caregivers . Frontiers in Medicine, 8:725510. doi: 10.3389/fmed.2021.725510 https://doi.org/10.3389/fmed.2021.725510

Ferraris, G., Dang, S., Woodford, J., & Hagedoorn, M. (2021). The role of dyadic interdependence among non-spousal caregiving dyads: a systematic review. PROSPERO, CRD42020215259 Available from: https://www.crd.york.ac.uk/prospero/display_record.php?ID=CRD42020215259

Fisher, O. (2021). The Impact of Micro and Macro Level Factors on the Working and Living Conditions of Migrant Care Workers in Italy and Israel—A Scoping Review. International Journal of Environmental Research and Public Health, 18(2), 420. https://www.mdpi.com/1660-4601/18/2/420

Fisher, O.; Fabbietti, P.; Lamura, G. (2021). Socio-Economic Predictors of Hiring Live-In Migrant Care Workers to Support Community Dwelling Older Adults with Long-Term Care Needs: Recent Evidence from a Central Italian Region. Sustainability 2021, 13, 5349. https://doi.org/10.3390/su13105349

Henschel, A., Laban, G. & Cross, E.S (2021). What Makes a Robot Social? A Review of Social Robots from Science Fiction to a Home or Hospital Near You. Current Robot Reports, 2, 9–19. https://doi.org/10.1007/s43154-020-00035-0

Laban, G., George, J., Morrison, V., & Cross, E. S. (2021). Tell me more! Assessing interactions with social robots from speech. Paladyn, Journal of Behavioral Robotics, 12(1), 136-159. https://doi.org/10.1515/pjbr-2021-0011

Lethin, C., Kenkmann, A., Chiatti, C., Christensen, J., Backhouse, T., Killett, A., Fisher, O., Malmgren Fänge, A. (2021). Organizational Support Experiences of Care Home and Home Care Staff in Sweden, Italy, Germany and the United Kingdom during the COVID-19 Pandemic. Healthcare 2021, 9, 767. https://doi.org/10.3390/healthcare9060767

Petrovic, M., Gaggioli, A., Landoni, M., & Ionio, C. (2021). Building-up Self-Re-Structure of Personal Life Story within Informal Care. . International Journal of Qualitative Methods (Vol. 20, pp. 33-33). 2455 Teller RD, Thousand Oaks, CA 91320 USA: SAGE Publications INC. https://doi.org/10.1016/j.ypmed.2014.10.028

Petrovic, M., & Gaggioli, A. (2021). The Potential of Transformative Video Design for Improving Caregiver’s Wellbeing. Health Psychology Open. https://doi.org/10.1177/20551029211009098

Sharma N, Brinke JK, Gemert-Pijnen JEWCV, Braakman-Jansen LMA (2021). Implementation of Unobtrusive Sensing Systems for Older Adult Care: Scoping Review JMIR Aging 2021;4(4):e27862 . https://doi.org/10.2196/27862

Svedin, F., Brantnell, A., Farrand, P., Blomberg, O., Coumoundouros, C., von Essen, L., Åberg, A. C., & Woodford, J. (2021).
Adapting a guided low-intensity behavioural activation intervention for people with dementia and depression in the Swedish healthcare context (INVOLVERA): a study protocol using codesign and participatory action research. BMJ Open, 11(7), e048097 . https://doi.org/10.1136/bmjopen-2020-048097

Zarzycki, M., & Morrison, V. (2021).
Getting back or giving back: understanding caregiver motivations and willingness to provide informal care. Health Psychology and Behavioral Medicine, 9(1), 636-661. https://doi.org/10.1080/21642850.2021.1951737

2020

Bei, E., Rotem-Mindali, O., & Vilchinsky, N. (2020). Providing Care From Afar: A Growing Yet Understudied Phenomenon in the Caregiving Field. Frontiers in Psychology, 11. doi: 10.3389/fpsyg.2020.00681

Bei, E., Vilchinsky, N., Morrison, V., & Zarzycki, M. (2020). Motivations and willingness to provide care from a geographic distance, and the impact of distance care on caregivers’ mental and physical health: A mixed-method systematic review protocol. PROSPERO, CRD42020156350 Available from: https://www.crd.york.ac.uk/prospero/display_record.php?ID=CRD42020156350

Casanova, G., DiRosa, M., Fisher, O., & Lamura, G. (2020) Between Migrant Care Work and New Occupational Welfare Tools: Changing Home Care Arrangements in Italy, International Journal of Environmental Research and Public Health, 17 (15), 5511 https://doi.org/10.3390/ijerph17155511

Coumoundouros, C., von Essen, L., Sanderman, R., & Woodford, J. (2020). Implementation of e-mental health interventions for informal caregivers of adults with chronic diseases: a protocol for a mixed-methods systematic review with a qualitative comparative analysis. BMJ Open, 10(6), e035406. https://doi.org/10.1136/bmjopen-2019-035406

Coumoundouros, C., Mårtensson, E., Ferraris, G., von Essen, L., Sanderman, R., & Woodford, J. (2020). Implementation of e-mental health interventions for informal caregivers of adults with chronic diseases: a systematic review. Implementation Science, 15(Suppl 4), P10. https://doi.org/10.1186/s13012-020-01062-3

Farrand, P., Woodford, J., Coumoundouros, C., & Svedin, F. (2020). Supported cognitive-behavioural therapy self-help versus treatment-as-usual for depressed informal caregivers of stroke survivors (CEDArS): Feasibility randomised controlled trial. The Cognitive Behaviour Therapist, 13, E23. https://doi.org/10.1017/S1754470X20000239

Hassan, A. Y. I. (2020). Challenges and Recommendations for the Deployment of Information and Communication Technology Solutions for Informal Caregivers: Scoping Review. JMRI Aging, 3(2). https://doi.org/10.2196/20310

Laban, G., Morrison, V., & Cross, E. S. (2020). Let’s Talk About It! Subjective and Objective Disclosures to Social Robots. Companion of the 2020 ACM/IEEE International Conference on Human-Robot Interaction. Association for Computing Machinery, Cambridge, United Kingdom, 328–330. https://doi.org/10.1145/3371382.3378252

Petrovic, M., & Gaggioli, A. (2020). The Potential of Transformative Interactive Video Storytelling for Improving Caregivers’ Mental Wellbeing: A Research Protocol. Annual Review of Cybertherapy and Telemedicine 2020, 275.

Petrovic, M., & Gaggioli, A. (2020). Digital Mental Health Tools for Caregivers of Older Adults: A Scoping Review. Frontiers in Public Health, 8, 128–128. https://doi.org/10.3389/fpubh.2020.00128

Semonella, M., Vilchinsky, N., Dakel, R., Biliunaite, I., Pietrabissa, G., & Andersson, G. (2020). SOSteniamoci: An internet-based intervention to support informal caregivers. In PSYCHOBIT. http://ceur-ws.org/Vol-2730/paper13.pdf

Sharma, N. (2020). Implementation of Unobtrusive sensing systems to support Informal caregivers in Elderly care. https://doi.org/10.5281/zenodo.4110117

2019

Zarzycki, M., Morrison, V., & Seddon, D. (2019). Determinants of motivations to care and willingness to care in informal caregiving: a mixed-method systematic review. PROSPERO, CRD42019149458 Available from: https://www.crd.york.ac.uk/prospero/display_record.php?ID=CRD42019149458

Coumoundouros C, Ould Brahim L, Lambert SD, McCusker J. (2019). The direct and indirect financial costs of informal cancer care: A scoping review. Health & Social Care in the Community, 27(5), 636. https://doi.org/10.1111/hsc.12808