ESR1: Prevalence of care and cultural differences


Work package 1
ESR Mikołaj Zarzycki
Supervisor Prof. Valerie Morrison & Diane Seddon
Co-supervisor Prof. Rachel Dekel
Host institution Bangor University, The United Kingdom
Contact ESR m.zarzycki@bangor.ac.uk
Contact supervisor v.morrison@bangor.ac.uk

Objectives: to assess the willingness to perform specific care tasks in diverse groups of caregivers with different beliefs regarding caregiving (i.e., filial obligation and familism) across Europe

The proportion of informal caregivers who would describe themselves as ‘willing’ to provide care for the person they are currently providing care for is unknown. Care tasks are varied and may include, for example, emotional, practical and nursing tasks. It cannot be assumed that willingness is equivalent across all these tasks. Since cultural values and beliefs have been found to play a significant role in shaping the way caregiving is manifested and perceived, they are likely to also affect willingness to care. Secondly, although research in informal caregiver outcomes is prevalent, there is limited research concerned with the impact of willingness on informal caregiver outcomes, including informal caregiver perceived burden or gains, quality of care, work participation. Knowledge about potential consequence of willingness (or lack of it) in populations with diverse cultural backgrounds can usefully inform the designing and implementation of carer solutions. Furthermore, the identification of the key pathways through which willingness to care might affect caregiving outcomes and caregiver behaviours (including potentially neglect or abuse) is necessary if future services and policy are to address relevant factors that enhance outcomes of both the informal caregiver and the care recipient. The ESR shall address these questions using mixed methods, combining quantitative (i.e., data from the ENTWINE-iCohort study) and qualitative methods of assessment over time of informal caregivers stratified by condition type, identifying willingness, processes and outcomes of care, incorporating questionnaire methods and also innovative photovoice story-telling methods. The empirical methods shall be informed by an initial systematic review and meta-synthesis.

Expected Results: We will be able to estimate the willingness to provide specific care tasks for diverse groups of informal caregivers across Europe. We will have insight into the consequences of willingness or lack thereof. This will help us to identify which type of support is necessary for whom and tailor it to caregivers' cultural values and norms.

Planned secondments:
Host Secondment supervisor Aim Duration
Bar Ilan University, Israel Prof. Rachel Dekel & Dr. Noa Vilchinsky To study the cultural differences in willingness to care and its consequences between Arab and Jewish caregivers and to learn about interventions for dyads 3 months
HomeLife, the United Kingdom Andrew Hopkins To study the design of care settings and the influence of formal care provision style on caregiver willingness and care recipient satisfaction 3 months

Outcomes